{Bernardo} Stem Cell Therapy for Optic Nerve Atrophy

Bernardo, an eight-year-old boy from Brazil, received his first stem cell therapy in April 2024 at one of our Thai partner facilities. Throughout his stay, his family graciously accepted our invitation to share their incredible journey. They discussed the difficulties they faced after discovering Bernardo's condition, their fundraising efforts, and the mix of hopes and fears they felt about the treatment. They also talked about the stem cell therapy process and the early improvements they saw in Bernardo's condition. Their story demonstrates resilience and hope, inspiring other families in similar situations.

Improvement statistics

Based on follow-up reports from 169 patients across 396 forms, here is the percentage who self-reported any improvement after treatment.

58%
Light perception
reported improvement · N=135
57%
Ability to see hand movement
reported improvement · N=123
54%
Pain in the eyes
reported improvement · N=61
52%
Visual field
reported improvement · N=141
52%
Blindness
reported improvement · N=126
49%
Vision in left eye
reported improvement · N=142
49%
Vision in right eye
reported improvement · N=138
46%
Nystagmus (uncontrolled eye movement)
reported improvement · N=69
46%
Strabismus (side glances)
reported improvement · N=74
44%
Colour vision
reported improvement · N=131

About this data

Patients self-assess each symptom on a 5-point scale (Worse / No improvement / Small / Moderate / Significant) at follow-up checkpoints after treatment, comparing to their pre-treatment baseline. "Reported improvement" combines the small, moderate and significant buckets. Data is updated daily from our internal patient registry. As with any medical treatment, past results do not guarantee future outcomes — improvements vary from patient to patient.

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